Many of you know that we are expecting a baby girl, Addison Leigh. We lovingly refer to her as Addi. From the moment that we found out that I was pregnant, we were thrilled beyond words! We could not wait to begin planning and preparing for our baby. I had the picture perfect pregnancy with no morning sickness or crazy cravings. We went at 17 weeks to find out the gender of our baby. We quickly found out how stubborn our little one was...after 15 minutes of poking, prodding, and prayer...we found out that we were expecting a girl! We were so excited! The planning began for our sweet girl.
The joy we shared was short lived. Only 3 weeks later we were blindsided with terrible news that something was wrong. The doctors were concerned with her size and her head. My doctors sent me to a specialist the next morning for a level II ultra sound. It was there that we recieved the news that ripped our hearts out.
Our baby has triploidy. It is a chromosome disorder which we have learned is not compatible with life. A normal person has 46 chromosomes and our Addi has 69 chromosomes. Most babies with Triploidy are miscarried very early in the pregnancy. It is amazing that Addi is still with us at 23 weeks. Also, most Triploidy babies have numerous birth defects. So far, we know that our Addi has an abdomen that measure 4 weeks smaller than that of an average fetus and the rest of her body measures 2 weeks behind. Her brain has a lot of fluid and swelling. She also has a rocker bottom foot and an extremely small jaw.
One of the leading defects in a triploidy baby is a heart defect. We are pleased to say that the doctors found no evidence of any heart defect in our precious girl. The organs that they were able to see on the ultrasound appear to function normally as well.
The specialist suggested termination of the pregnancy. We replied with an absolutely not! Just moments before the ultrasound ended, our Addison reached out and was playing with her toes. Our little girl is a fighter and as her parents we will protect and provide for her until God decides to take her home.
Currently, we are visiting the doctor weekly to check Addi's heartbeat and to closely monitor my health. I hope to be able to post a weekly update on Addi.
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8 comments:
We are praying for Addison Leigh and the rest of the family every day!
How far along are you now?
I am 24 weeks today (Sunday 6th). Thank you for your prayers!
Kathi and Ken -
You guys know I love you so much. Y'all are so brave to be so open with everyone and what you are experiencing right now. I pray for you and little Addi every day. Love y'all!
Kenny and Kathi,
We love you guys and are praying for you and little Addi. Please let us know if we can do anything. You guys are amazing.
Love,
The Swoszowski's
We love the three of you very much. You both amaze us at how brave and strong you are. We are here if you need anything.
Praying for a miracle
The Haff's
love you skrumpy! we are really glad youre doing this so we can keep updated.
Kathi & Ken -
I am praying daily for you both, and especially for Addi. There are so many people who love your little girl already!! It's amazing to see how such a tiny person can touch so many lives! Love you all!
Kathi and Ken-
I am continually amazed at how strong you both are through all of this! I know that no matter what, God is going to bring good out of this situation - I can already see how He has, with your determination and strong faith shining through! I am praying for you both as well as precious Addi. I love ya'll!
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